Asma Al Fakeeri shares her story as an Experience Manager living with Fibromyalgia Syndrome (FMS), a condition that presents daily challenges. Driven by her passion for inclusion, she aims to create solutions that ensure no one is left behind. Asma discusses how our Inclusion and Diversity (I&D) initiatives have supported her career and wellbeing. Through her story, she hopes to inspire others to embrace their challenges and encourage empathy in design, paving the way for a more inclusive future in digital services.
Could you briefly introduce yourself and share a bit about your disability and the challenges it presents?
I’m an Experience Manager with Digital Services, based in Riyadh. I have been diagnosed with Fibromyalgia Syndrome (FMS), a neuropathic disorder that causes constant pain due to the brain’s inability to process pain signals correctly. This condition affects my skin, muscles, and bones, and while it is incurable and untreatable, it can be managed to some extent through various pain management procedures and treatments.
To give you an idea of what it feels like:
- Typing on a keyboard can feel like I’m smashing my fingers.
- I experience shockwaves of pain in my legs, making it difficult to walk.
- Some fabrics feel as rough as sandpaper against my skin.
- Water sometimes feels as if it’s burning my skin.
FMS can also mimic autoimmune diseases such as Lupus, Multiple Sclerosis, Arthritis, Anaemia, and Diabetes, presenting symptoms without a definitive diagnosis or cure.
What inspired you to join professional services despite your condition? And what drew you to your current role in PwC?
Experience Design focuses on creating the best possible end-to-end experiences for specific target audiences. Although I was initially uncertain about applying due to my disability, I recognised the significant role our firm plays in shaping the future of digital solutions in our region, particularly in Saudi Arabia, where I’m based. As a Saudi national, I felt a strong sense of responsibility to ensure that our designs, approaches, and platforms are inclusive, embodying the principle of “No one left behind.”
How has the firm supported you through its Inclusion & Diversity agenda to help you excel in your career despite the daily challenges you face?
Despite the ongoing stigma surrounding disability, I genuinely appreciate the efforts of our Inclusion & Diversity (I&D) team in raising awareness and ensuring equal opportunities. Additionally, PwC’s All Abilities Network has been key in raising awareness and fostering a truly inclusive culture. As part of our broader I&D strategy, this network ensures that people of all abilities have access to the resources and support they need to succeed. On a larger scale, the firm’s Middle East and Global disability inclusion efforts align with our goal of building an inclusive and accessible workplace for all, keeping disability inclusion at the forefront of our ongoing efforts to create a welcoming and supportive environment for everyone. The firm has provided me with two essential forms of support:
- Mentorship and guidance: This has helped me navigate difficult situations and make the right decisions for my career.
- Flexibility in the work environment: Accommodating my health situation allows me to excel at our firm while prioritising my wellbeing.
How do you prioritise your work while ensuring you are still looking after your wellbeing?
Balancing work and self-care is crucial for me. I plan my week in advance, leaving room for unexpected health issues, which helps me stay focused and step away from my computer when necessary. I also start my day with a workout or swim to stay active, and I make it a point to stay hydrated throughout the day.
Can you share any insights or lessons you've learned from living with your condition that you think others could benefit from?
- Listen to your body: Repeated symptoms might be a sign that something is wrong.
- Be kind: Remember that what someone shows you is just a small part of what they’re dealing with.
- Always ask how you can help, instead of assuming: In Experience Design, we emphasise, “You are not the user.” Each person’s needs are different, and the best way to understand them is to ask directly.
